10-year multiple myeloma survivor: Why I joined a clinical trial at MD Anderson
BY Jerry Burley
August 24, 2022
Medically Reviewed | Last reviewed by an MD Anderson Cancer Center medical professional on August 24, 2022
When I was diagnosed with multiple myeloma at age 63, it actually didn¡¯t bother me. I felt like whatever this was, God had a plan charted for my life before I was even born. Apparently, cancer was meant to be a part of it. So, there was no sense in getting angry or upset about it or throwing myself a big pity party. This was just my lot in life.
I chose MD Anderson for my multiple myeloma treatment because that¡¯s what my doctor recommended. But I¡¯d already been coming here regularly for prostate cancer screenings. So, I trusted its doctors as medical professionals and experts in cancer treatment. As it turns out, that trust was well-placed. Because I¡¯m still here, 10 years later. And, my cancer is still in remission.
Surprise multiple myeloma diagnosis leads to first round of treatment
By the time I was diagnosed, my disease was not considered curable. Multiple myeloma has only three stages, and I was in the final one. I¡¯d experienced no symptoms, save a little back pain. But an X-ray showed cancerous lesions all over my spine and rib cage. Two of my vertebrae had cracked because the cancer was growing through the bone.
Myeloma specialist recommended a stem cell transplant under . But first, I¡¯d need two weeks of radiation therapy under radiation oncologist , to treat the lesions on my spine, and several rounds of a chemotherapy drug called bortezomib to prepare my body for the stem cell transplant.
Multiple myeloma relapse leads to clinical trial
I had a stem cell transplant using my own cells on July 9, 2013. Recovery was rough. I ended up back in the hospital the next two Christmases in a row for various issues. But after that, I finally started getting better.
Unfortunately, my cancer relapsed just a few years later. But Dr. Wang said I was a good candidate for a clinical trial involving a new targeted therapy drug now called daratumumab. If I joined it, I¡¯d get an infusion of that drug once a month, then take an oral chemotherapy drug called pomalidomide once every other day for 21 days out of each month.
I thought about all the people who have cancer, and how some of them can deal with it pretty well and others can¡¯t. I felt like me having this disease might be an opportunity for doctors to study it more closely and possibly find a cure. So, if I could help out with that process, I wanted to do it.
Life after a stem cell transplant and a targeted therapy clinical trial
I joined the clinical trial in September 2015. It went really well, and the experimental treatment I received put me back in remission within a year.
I still have a little weakness in my arms and legs. And I¡¯m taking a different course of drugs today due to another relapse. I may have to keep taking it for the rest of my life. But that¡¯s OK.
I don¡¯t get around as easily as I¡¯d like to anymore, but I¡¯m alive and able to do most of the things I want to do. When I was diagnosed in 2012, the life expectancy for someone with multiple myeloma was only five years. And here I am, still around after 10 years.
I haven¡¯t completely recovered because multiple myeloma isn¡¯t my only issue. I also have diabetes, heart problems, high blood pressure and sometimes deep vein thrombosis, or dangerous blood clots. But I have a team of specialists at MD Anderson who help me manage all of those conditions. I see endocrinologist , cardiologists and and hematolologist .
I also see multiple myeloma specialist now instead of Dr. Wang, because he shifted his practice to focus on a very specific subtype of cancer that¡¯s different from mine. I really hated to lose him, because Dr. Wang was great. But all of the doctors and staff I¡¯ve met at MD Anderson have been wonderful. And I am grateful for the care of both Dr. Wang and Dr. Manasanch.
I believe if my life¡¯s journey were finished, then I would be finished, too. So, I must not have done everything I¡¯m supposed to do just yet. I am grateful to both God and MD Anderson for giving me more time to meet my goals, because I know with their help, I will.
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If I could help, I wanted to do it.
Jerry Burley
Survivor